Covid,Chronic illness and disability

Covid has affected us all,I was curious to what the differences were within the chronic illness community. Many of whom were already isolated. 

Not being able to have my regular oxygen treatment means I have got worse. I  have  started the rehabilitation program again and am trying to exercise enough but over do it so my joints don't start to stiffen up. 

When lockdown started a lot of us thought people might start to understand, some did but for many it was the opposite.

 I saw many ableist posts from people claiming it's impossible to work from home. Thousands of us and our carers do everyday, we have no choice. 

Without a thought for how others cope when this situation is their lives. It amazes me people's lack of effort in trying to wrap their heads around  the lives of chronically Ill people. 

99% have lost friends,jobs,education or family through lack of understanding. I am used to the way I live,what plays on my mind is other people's perceptions. Many others who I spoke to said the same.

They feel left by society as everything begins to ease. confessing it seems unfair to them that pubs,restaurants,cinemas and theme parks can reopen whilst they can't get access to treatments. Being in a hospital is a whole different thing to being socially distanced somewhere,although I feel there must be a way to get them the treatments they need. Another one is careers, 

I read a thought provoking post from Jessica Taylor-Bearman on how her husband is her main career, he became ill leaving her juggling a baby,her husband and herself. A Lot of parents of disabled children have been hit hard. Struggling, balancing everything whilst looking after their child or multiple children. 

As a family we have been very lucky managing to get priority delivery slots, despite some coming at really awkward times,as well as this we have had government food parcels. 

I would feel so much better going out if I knew everyone was covered up, I know many others feel as I do. 

This blog was an interesting one for me because most of my blogs are full of facts, I suppose these are facts in a way. Part of me wanted to expand upon some of the points I made but I think they are pretty self explanatory.