Sunday, 25 August 2019

A world with friends Summer Fayre

On Saturday 31st August 2019 between 11am-4pm A world with friends will be holding a summer fayre at Highbury community center. Throughout the day you You can enjoy refreshments (including cream teas) along with tons of fun stalls and activities for you & your family to enjoy. 

 We will be offering face painting, a  guess the name of the teddy competition there will be an Usbourne book stall, A sponsored leg wax by one of our volunteers. 

As well as competitions including Fancy dress, colouring and table football.

In addition to this there will be

a raffle with many amazing prizes including: 

  • Las Iguanas £40 gift card
  • Number 40 hair salon 5 star voucher 
  • Green mango natural hair salon treatment and cut voucher 
  • Bird world voucher 
  • Jagroll photography studio- framed print portrait voucher worth £75 
  • Greggs £10 gift voucher 
  • Tenpin bowling voucher for 4 people 
  • 2 Cineworld tickets 
  • 2 Airarena tickets 
  • Q hair and beauty voucher 
  • 2 playzone tickets  
  • 3 hour party at highbury community center.
  • Family voucher for Longdown activity farm 
  • Family voucher to Stansted park,house and gardens 
  • The Barber’s lounge £12 voucher and hair product 
  • 1 hour photoshoot with Charlotte Brown photography 
  • Back massage with Steph at Serenity beauty
  • 20 minute reading with Kate May at Mystic river lounge 
  • Bottles of wine
  • Boxes of Chocolates  
And many more 

We hope to see you there. 


Wednesday, 14 August 2019

The swan Princess A kingdom of music film & soundtrack review

The swan Princess A kingdom of music film & soundtrack review: 

I absolutely love how the soundtracks is full of lots of different types of music as many soundtracks seem to stick to the same sort of songs which in a lot of cases can turn out to be very dull. It's also very upbeat modern making it perfect for summer. 

Moving onto the film I found it to be very touching as well as humorous. Bringing the parts of the original Swan Princess into the film was very clever,especially with the 25th anniversary on the horizon.

I felt the added element to the dragon curse in between the main story was really clever because it broke the story up from the main plot giving you something else to watch out for. 

It was really nice to see Alise talk about her past life because we haven't seen her really open up about that, when she first arrived she didn't speak then suddenly we see her as a confident princess settled within the kingdom.


It was also really lovely to see how grateful she is for the care Odette & Derek have given her. 

I felt having Lucas go away then coming back just in time for the festival enabled for a really good dynamic between Lucas & Elise. If Lucas had just stayed in the kingdom it would make less sense whereas having him go away time passes causing Elise to miss him,so it in a way is if she is seeing him for the first time as is the same with Li for they have only just met. 
I found Elise's reflections of her previous time with Lucas really well thought out & enjoyably sweet. 

Another thing I really loved was seeing all the dynamics with all the characters. Lord Rogers always seemed like a almost father/uncle figure to Lucas so I loved seeing again,I also loved seeing all the jokes between Derek & Odette about breaking the curse. 

Moving onto the atual contest me & my sister really enjoyed playing judge along with the acts & giving them marks out of ten then again judging them against the previous acts. We also had a lot of fun laughing at Jean~Bob's harsh judging tactics. 


One thing that I found slightly confusing is everyone's ages, I suppose in animation no one really ever does age but with Elise & Lucas ageing it is a bit confusing how no one else ages & also didn't Rogers propose to Uberta in the last film? so are they now together or not? 

I hope you enjoyed my review & please check out my First Kingdom of Music lyric video for "Goodbye"  

https://youtu.be/6SrsnOMN-ew

Friday, 12 July 2019

A world with friends 2019 prom

On May 31st 2019 I had the pleasure of attending A world with Friend's 3rd Portsmouth prom held in the Guildhall. I'm aware that this was nearly two months ago, but my health has been so up & down that it has been impossible to even think about planning a piece of writing,let alone to actually sit & write it.

Back to the night in question upon entering the guildhall we were taken over to a desk to sign in, then we got given the opportunity to have our photos taken on the red carpet under the world with friends backdrop. Then we were escorted into another room to mingle with guests. One lady even mentioned my previous blog telling me how much she enjoyed it which made me  incredibly happy considering a few years ago I had lost all ability to read & write. To be in a position of being able to pick up a pen or type something out is an absolute joy, I never thought I would regain.


Then came Emma Lewis & Chloe up onto the stage dressed as superheroes followed then by a dinner consisting of a rich tomato soup accompanied by crusty bread rolls, Chicken Kiev with steaming vegetables along with three glorious chocolate desserts.   


throughout courses intervals of Disney themed entertainment were expertly  performed to us by the amazing manic stage productions company, first to step up to the stage,were there wonderfully talented acrobats who not only did an aerial performance but also gave us an incredible fire show.   

neighbouring this a little while later appearing from nowhere a man began to sing a magnificent rendition to "be our guest" from Disney's Beauty & the beast.

As all food was consumed,plates cleared away & entertainment over now came a chance for guests to explore the nextdoor room, a room  filled with chocolate & sweets as well as a photo booth where guests could use props to take photos with their friends.


It was a pleasure to watch children teens & young adults be able to take photos with their new found friends. But it also gave me great happiness seeing people care for them like they had known them their whole lives. It was so refreshing to  experience people taking medication whilst surrounded by people & not have to worry about how it looks to them or how they might wonder what's going on or why.
Before long it was time for more entertainment,Portsmouth based singer Harvey Jay Dogdson played us a marvellous set of covers and originals. When I spoke to Harvey about his involvement in the prom he was the absolute sweetest. He told me he felt “extremely honored” to have been given such an amazing opportunity for “such a wonderful cause”  

Before it was his time to perform Harvey was shown to his own dressing room, had a soundcheck and attend the meal amongst prom goers.
Having performed he was then free to talk amongst guests,Harvey told me that  he felt “very proud” as he was greeted by people showing their appreciation and love for his music

Overall Harvey’s prom experience was a very positive one as he said it  gave him the chance to speak to some brave teens and young adults, whilst being able to hopefully “spread a message that anyone is capable of anything as long as they believe in themselves and always look at the positive side.”

As the night drew to a close it was time to dance before heading home after what had been a fantastic awe- inspiring evening.

Wednesday, 15 May 2019

M.E 7 day challenge

M.E 7 day challenge:


My life with M.E although getting slightly better, is very limited. There is not alot I can do as I can't sustain more than a few hours of activity before falling asleep. It's very frustrating because you feel like you live half the life of a able bodied person. I don't have any grades so to speak of, I can't go out to get a job. I can't really do much but I do try to do as much as my body will physically allow me to do. So that's a start.
My bad days consist of resting, watching T.V/films or listening to audiobooks. I get very frustrated on bad days especially if I'm flaring up & have no clue why I'm flaring. My family help alot on days like this because they can always make me feel better, social media also helps as I'm in support groups which I find really useful.

But it also shows you what everyone else is up to which when you feel totally awful is really not helpful.
On my good days I try not to push my limits (I mostly know what they are now) but It also makes me really happy to be able to get things done & I'm overall generally happier.
My biggest challenge I have faced whilst having M.E is definitely re ~teaching myself to read & write again. How I did it I have no clue but I'm so glad I was somehow able, I hope that one day I'll be able to help someone else do the exact same thing. Also dealing with people's opinions of me.
After the school I felt like no~one wanted me around. But now I know that not to be the case.



I wish people would understand how to treat people not just people who have illness but everyone. So many people are judgmental or just don't really care. All I needed at my worst time with this illness was compassion & hardly anyone had that in them.
My advice to other sponnies would be to just be you. Do whatever you can & don't worry about what you can't do. Also rest as much as you need to because you really do need it.
M.E isn't all of me right now I'm doing all I can to get better but in the future I hope to be able to do so much more. I really want to set up schools for chronically ill teenagers because there really is nothing around for us except people who really don't or want to try. I also really want to do more writing especially screenwriting

Dear Rare disease

Dear Rare disease
alot of people would say you have ruined my life, in tons of ways you have. Thanks to I have little friends a un finished education & hardly any future job prospects & the ones I feel may be possible one day,lead me to believe my life will be very dull.
Luckily I don't remember much about being ill from being a child but I do have medical tramas some being completely ridiculous. Others not ,but they all make sense one way or another.
Thanks to you hardly anyone understands me or my life. I now have ME & have little chance of full recovery as oy 5% of M.E patients recive this. I know discrimination from being sick & I'm pretty sure I wouldn't get this easily offended or upset if  I had ever had you.
Because of you I slept for 2 years non~ stop. When I awoke the world had moved on, not only that I then developed really weird coping techniques which when I realized were ridiculous completely tore me down & I realized that the world isn't the way I grew up thinking it was.


Over the past few years you have made me realize that my life will always be a struggle. because of you I'm most likely to always have the fear that no one wants
to hang out with me because I'm the problem person, or hard to look after ect... most likely I always be on the outskirts of society as hardly anyone understands me,my life or the way I have to live it.
If I didn't have you I probably wouldn't know this much suffering or the pain of seeing so many of my friends in the same position. I believe you can tell if a person will be successful at a early age. I've always be looked at as the sick one. When people didn't know what was wrong & maybe even more now they do, but still fail to understand.
One good thing & probably the only true good thing that has come from having you is that I know I have more compassion than the average person. Alot more empathy & understanding I also have friends from support groups that I know I am very lucky to have even if they live to far away to meet.
My heart knows that I can't let you define me,I so hope that one day that gets to be the case. I hope one day people will see beyond you. I hope some day despite you, I will be able to forfill even half the things I want to. Until then I'll just have to keep trudging along doing as well as I can.

Wednesday, 1 May 2019

A world with friends

I debated long and hard about how to start off this blog,all I can do is write from experience. So that’s what I intend to do. I will warn you all that I tend to go off on massive rambles most of the time in a direction completly off subject but I always try to get back to the point, there is always a logical explanation for anything I may include within ramble.

Before I get to the point I feel for this to make sense I need to start at the beginning well what I feel is the beginning. For me it’s the day I was unfairly dismissed from school.

I showed up  after the holidays being told upon arrival I'd left. I hadn't although, my mum had wrote a letter to the head teacher saying I would leave before the last week of the year.
I remember having a  million questions fired at me, then getting taken to do a catch-up lesson, weird really when they were telling me I had left, If they believed this to be true, there was no point in me attending any class. I wouldn't be there to continue.

I went home not exactly knowing what was going to happen, school said they could add me back to the register but the damage was done they'd done what they had so there was no point.
That day I celebrated leaving school by watching my sister playing in the park,My friends weren’t told I had left and I’ve been told by my friends that most teachers didn't actually know.

It was like I had never been there,or even existed. No-one from the school stood up for me or fought my corner,my basic human right of an education, so it was taken from me when all it needed was a slight adjustment. They were also pretty awful at  safeguarding refusing to do my emergency injection if needed, never letting us know if a sickness bug was going around (Throwing up for me means I lose my replacement Cortisol meaning I could potentially end up in hospital) and completely failing to understand how serious my condition.
My parents did everything they could to keep me in school but the school didn't want me there.


Throughout childhood and early years as a teen,there was never moment I doubted my worth or weather or not I was wanted in society. I showed up did everything I possibly could and more yet suddenly I felt a burden to everyone, I started to think I was going mad, there wasn’t any logical reason that I could get through my head to have been treated so badly.

I’d like to add at fourteen I wasn’t like most fourteen year old. I've always had mostly the emotions of a child, I had little clue of the world around me. Other than my own life. For me discrimination was something never to even cross my mind, I believed I could do anything and so was my right to do whatever I wanted. I also didn’t think about being ill even though I always had been.

I think I probably speak for everyone when I say not being wanted is one of the worst things in life because you start thinking you're going insane and that none else could possibly ever want you around. I had many hours to think about all of this.

As a result of school seeing me as a complete waste of space, I felt society also did.   I didn’t feel as If I was to fit within it anymore, unsure if I ever actually ever had.
I looked everywhere for something,somewhere or someone to make me believe that I actually meant  something or was able to belong somewhere,I knew now that most people thought of me as a problem or nuisance. I didn’t have a reason to see anyone anymore, making me more isolated than ever. Hardly anyone contacted me or suggested meeting up. I would of most likely been to unwell but the thought would of been nice. Everyone disappeared,leaving me with little friends.

Social media was my only window to the outside world,It became my best friend, yet worst enemy I still had online friends from various T.V show fandoms who for some reason didn’t leave despite everyone else doing so. But social medias main aim is to allow you to see people's daily lives. I was led at home ridden with hideous pain,sleeping for the most part of the day.

Seeing all the things I couldn't do made me feel like I had failed my existence. These posts left me wondering more than ever why it was me in this situation, why should I be suffering when everyone else is allowed to go off and live their lives?.

Why should the universe still be spinning when mine had stopped? All my plans for the future were in ruins.

I was spending what should of been the best years of my life, unable to lift myself off from the sofa let alone able to go out to do anything my peers were. Being so young I was and still am seeing everyone I used to know being able to study, get jobs, learn to drive and be able to party into the small hours.


That was when I found Friend Finder. My mum sow Lewis on the news ,then contacted him about getting involved in a charity coloring book she was designing to help raise funds for me to get a electric wheelchair.

I myself then watched a few of Lewis’s interviews & was amazed by how positive he was. Despite everything going on
In his own life, he just wants to help others.


Being invited Friend Finder’s first ever prom was a experience I won’t ever forget. upon entering the guildhall  I was surrounded by people sharing similar consequences to my own. I knew that I wasn’t the only person going through the same or similar things to me but seeing it was something else all together. Suddenly I didn’t feel so alone, I already felt as if I had friends yet at that moment I hadn’t met a single person in that room


Since becoming ill I have lost so many friends,friend finder has given me the chance to make better ones with people who understand and value me as a person more than I feel most of the friends from my past ever did. Friendship is one of life's most important things. Everyone needs a shoulder to cry on when needed, someone to be able to cheer them up and make them laugh a little louder everyday. Having someone there to tell all your secrets to or share stupid jokes with is so important.

Over the past two years I have had the absolute pleasure of seeing the joy upon young peoples faces when they start to form friendships and begin to have fun with their new found friends. By helping out with further proms I hope to continue to see people create everlasting friendships and to remain to create table decorations that can be treasured forever.

Now that friend finder is now going global and transforming into a world with friends I hope it is able to reach anyone in need of a friend. This way not one person will ever feel alone.

Monday, 24 December 2018

Medical Tv shows books ,& films that have inspired me this year

I got a email about a month ago asking me if I wanted to delete my blogger, I then realized I haven't used it in months but I had no blog ideas then I thought of this,its a list of all the medical based shows,films & books that have inspired me this year, I also want to do a people/avent one but that will be after the new year as I have only just thought of it. Amyway plz enjoy my list

FILMS:

NETFLIX:A christmas prince: I think the title of this mostly gives it away but to sum it up after his dads death the prince goes off travelling to "find himself" no~one knows where he's gone or anything but he has to come back to claim the throne. So the kindgdom has a press comfrence for his return & loads of press come, only the prince doesn't show so one of the reporters sneaks into the palace pretending to be the princess's new tutor. She spends her time spying on the royals & starts writing a newspaper aticle to send off when she gets back home.
She also finds out a big family secret that could stop the prince becoming the heir & gas to find a way to fix it.

I loved this because it was the first time have ever seen a disabled princess,I also loved how she wasnt petied on & was pretty much allowed to do anything any other princess would do in her own way but not treated any diffrently,I also loved how we got to see her realtionship with the reporter because that friendship helped her so much throghout the film & sequel because any doughts she had she fixed.



Wonder:Wonder is the story of August a boy with facial differences who begins fifth grade at mainstream elementary school for the first time in his life. I really enjoyed this because again you get to see everyone elses point of view about Auggie's illness & not just his side of his story.


TV SHOWS:

Alexa & Katie:
I atually wrote a big blog on this & my love for it do instead of re writing it or parts of it heres the link https://www.blogger.com/u/1/blogger.g?blogID=4192252646603289566#editor/target=post;postID=6375938035549218001;onPublishedMenu=allposts;onClosedMenu=allposts;postNum=1;src=postname


TDG: Theres not alot to say here I just really love the diversity of this show theres so much going on. Not alot of shows have disabled charcters or charcters with disabilities yet this has mutiple. I think its so important to give everyone some sort of voice & for eveyone to see themselves & this show does that better than any other.

KATY: The Katy series was based on Jaquline Wilson's book KATY that was based on what Katy did. Katy has a rope swing accident & ends up in a wheelchair,the show follows her journey for the next few months. My favrouite thing was how we got to see what was going on on her imagination as well as it atually showing her emotions through what she said or how she acted. I think it would of been better for them to have made it into a film instead of a few IPlayer episodes & I aldo think it could of been lonfer as the end seemed a little rused but over all I really enjoyed it.


MY LIFE& Living diffrently I love both of these because they show a variety of diffrent kids doing diffrent things regardless of ability or age


Inventing the impossible: This show was a joy to watch because you could tell all the inventors really wanted to help ,& were not just hierd to do a job they seemed like real people. The stories of the people they were inventing for were also always really well told & that was such a important part of the show,the things thr maanged to do with tbese inventions were incredable,it was such a jolly thing to watch.


BOOKS:


From a distant star: This follows the story of a alien who has crash landed on planet earth & a boy who is dying from cancer. To hide from the humans the alien gets inside the boys body cures his cancer & becomes him. But a team of Space scientists are tracking down thr alien so the alein uses the boys body as a disquies & convinces his gf to help him get back home.

This story wasnt very medical other than the cancer stuff at the begining but I really enjoyed it & wanted to make the list longer😂

Looking at the stars:I loved this because Lewis really captured what its likr to have a illness no matter how big or small that may be but in a positive way making you be able to laugh as well as cry.